BROOKE EBY, 37, (THECOUNT) — Brooke Eby, the TikTok star who transformed her diagnosis with amyotrophic lateral sclerosis into a widely followed chronicle of humor, resilience and advocacy, has died at 37 after complications from ALS, according to the ALS Network.
Eby became known online as “Limpbroozkit,” using social media to document the realities of living with ALS, also known as Lou Gehrig’s disease. Her videos mixed comedy with candid discussions about losing mobility, navigating relationships, using adaptive equipment and confronting a terminal illness, attracting hundreds of thousands of followers.
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The ALS Network announced Eby’s death Thursday, Oct. 1, describing her as an extraordinary advocate, storyteller and community builder. The organization said her storytelling helped introduce ALS to people who previously knew little about the disease and helped create connections among people living with ALS and their caregivers.
Eby was diagnosed with ALS in March 2022 at age 33 after years of unexplained symptoms and medical testing. Rather than retreat from public life, she began sharing her experience online, often using humor to make difficult subjects easier for people to discuss.
“Levity is my superpower,” Eby said during a 2023 appearance on TODAY. “It’s really how I’m bringing my story to the world. I’m trying to use humor and really let ALS be heard.”
Her approach quickly made her one of the most recognizable social-media voices documenting life with ALS. She joked about wheelchairs, dating, encounters with strangers and the everyday frustrations of losing physical independence while continuing to educate viewers about the disease.
In addition to raising awareness, Eby became an advocate for increased ALS research and support. She challenged scientists, policymakers and donors to “operate at the speed of ALS,” arguing that research needed to move quickly because patients living with the disease did not have unlimited time.
Eby also founded ALStogether, an online peer community that connected people living with ALS, caregivers and others affected by the disease. The ALS Network began integrating ALStogether into its organization in 2026 to expand the community and its resources.
In June 2026, the ALS Network honored Eby with its Dean and Kathleen Rasmussen Advocate of the Year Award for her advocacy and leadership.
“I didn’t choose ALS, but I did choose to get loud, and be irreverent about it,” Eby said after learning she would receive the award.
Her advocacy also extended into adaptive fashion. Working with adaptive clothing company Silverts, Eby helped create the B.E. Collection, designed for younger people with disabilities who often found adaptive clothing options overly clinical or geared toward older adults. A portion of proceeds benefited Team Gleason, an organization supporting people living with ALS.
Eby had initially begun documenting her illness shortly after receiving her diagnosis. What started as a way to explain her changing life to others eventually became a large online community and a platform for ALS education.
Her symptoms had begun years earlier. At 29, while living in New York City, Eby noticed that she could no longer properly push off with her left foot while walking. Doctors initially considered more common explanations, and she underwent repeated testing before eventually receiving the ALS diagnosis.
As the disease progressed, Eby went from leg braces to a cane, then a walker and eventually a wheelchair. She continued producing content while confronting the physical decline associated with the progressive neurodegenerative disease.
Eby often spoke openly about the emotional shock of her diagnosis. During her TODAY appearance, she recalled crawling into bed with a large bag of M&M’s simply as a means of getting through the immediate aftermath.
A friend’s wedding also became an important moment in her adjustment to life with a disability. Eby arrived using a walker similar to one belonging to the bride’s grandmother and initially felt embarrassed. Instead of leaving, she and the wedding party embraced the situation, turning the walker into part of the celebration.
That experience reinforced Eby’s belief that humor could break down discomfort and allow people to talk more openly about disability and terminal illness.
Eby worked in the technology industry for Salesforce for approximately a decade. Salesforce CEO Marc Benioff paid tribute to her following news of her death, describing her as an “amazing warrior” and praising her positive attitude.
Eby was born Dec. 22, 1988, and grew up in Maryland before eventually living and working in New York and building her career in technology.
Throughout her illness, Eby resisted the idea that people should focus solely on her as an inspirational figure. Instead, she repeatedly asked viewers to focus on ALS itself, support research and learn what the disease does to people and their families.
“I always say my North Star was giving a face to ALS,” Eby said on the Brain & Life podcast.
The ALS Network said Eby leaves behind a legacy measured not simply in followers and views, but in the community she created and the conversations she started about a disease that affects movement, speech, breathing and other functions as nerve cells progressively deteriorate.
Eby’s death was attributed to complications of ALS by the ALS Network. She was 37.
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